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Wednesday afternoon Steve Gleason and former teammate Scott Fujita were on hand as Chase donated $350,000 to help fund Gleason’s house for ALS and MS patients.
When Gleason spoke the room quickly hushed.
Gleason now communicates through a computer that generates his voice.
He spells his words by making eye contact with keys on his computer.
The Team Gleason House will open later this month.
“Never have I been more proud to call this my home than now. As you know I was diagnosed with ALS two years ago. A terminal diagnosis can really mess with your head. Honestly it makes you want to run away to the moon.” said Gleason.
Throughout his struggles Gleason has maintained an uncanny sense of humor.
He joked that some reporters looked like they had partied a little too much at Tuesday night’s media Super Bowl party.
He was asked what was the most humbling experience in his fight with ALS.
His response was a classic.
“To be honest having someone else wash my balls.”
Fujita responded, “Like I said, I don’t want to put words in his mouth.”.
Former Saints Steve Gleason rides 150mph for ALS awareness.
A former New Orleans Saints player is being honored for making a difference in the fight against Muscular Dystrophy.
The first annual Muscle Team fundraiser was held Wednesday night at Harrah’s Hotel, in the Vieux Carre Ballroom.
Steve Gleason was named this year’s MDA Champion of Spirit Honoree.
His wife Michel accepted the award on his behalf.
The former New Orleans Saints player was diagnosed last year with ALS, also known as Lou Gehrig’s disease.
Since then he and his wife have gone above and beyond the call of duty to help raise awareness.
“They’re traveling all over the U.S. they’re doing events, they’re raising money. They’re raising awareness, telling people how ALS is a difficult disease to deal with but you can live with it,” said New Orleans MDA Executive Director April Catarella.
Several MDA Ambassadors attended the fundraiser, and were paired with local celebrities like Saints punter Thomas Morstead.
Autographed sports memorabilia were part of a silent auction.
Funds raised will help pay for research and treatment, as well as the annual MDA summer camp.