Months ago we introduced you to a mother working on building an all-inclusive park. She’s doing it while raising three kids, one of whom is disabled, and expecting a fourth. WGNO News Anchor Vanessa Bolano has the update from Destrehan.
It’s easy for Hillary Sirmon’s two girls to get around at the park. It’s a different story for Benjamin.
“Getting Ben out is a little more interesting and difficult especially when there’s not ramps and things like that to move him through. It’s a little bumpy, but hopefully soon well come out here and Benjamin will go right up to the equipment like the kids do,” says Sirmon.
Benjamin just turned two and while he’s constantly making progress, he’s battling a rare genetic disorder called Centronuclear Myopathy. Because of it Benjamin lives on life support, and his life expectancy is less than 10 years. It’s why his mother is doing all she can to give her son a chance to play at the park.
“Right now we have $90,000 towards our goal,” says Sirmon.
In a matter of months she’s almost way there. Hillary needs to secure $200,000 to build “Miracles to Milestones.”
The all-inclusive park at the current site of the East Bank Bridge Park under the Hale Boggs Bridge in Destrehan will allow children and adults with or without disabilities to play together. St. Charles Parish is donating the site and the foundation, and thanks to several corporate checks and generous individuals a mother’s dream is becoming a reality.
“This has been quite a journey for all of us and we are so excited. Not just for our family and Benjamin, but for this community,” says Sirmon.
Hillary expects to see “Miracles to Milestones” come to life earlier than expected; sometime this summer.
St. Charles Borromeo is donating all proceeds at their “Jack Iko Memorial 5K Walk/Run” to “Miracles to Milestones.” The event which will have a 1 mile fun run for children 12 and under, as well as the 5K run will be held on Saturday, March 29, 2014 at 10 am. There are several sponsorship opportunities. Please contact Connie Powell at 504-559-0196 or firstname.lastname@example.org with questions or to arrange a donation.
All donations can be sent to United Way click here.